Local mother hosts walk to bring awareness to rare genetic disease

ROCK HILL, S.C. — A group from Rock Hill is walking to bring awareness and hopefully find a cure for a rare genetic disease.

Tuberous Sclerosis Complex (TSC) is a genetic disease that only impacts 50,000 people in the U.S. and one million worldwide. According to the Mayo Clinic, TSC is a rare genetic disease that causes noncancerous tumors to form in different parts of the body and is normally diagnosed in infancy or childhood.

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Kristen Moore, Vice Chair for the TSC Alliance of North Carolina, has a 3-and-a-half-year-old son, Jackson, who was diagnosed at just 7 weeks old after he began having seizures. Moore’s son went into brain surgery at 17 months old, he was later diagnosed with autism and is non-verbal.

On Saturday, Moore and other families in Rock Hill gathered at Cherry Park to raise funds and awareness that will one day lead to a cure for TSC.

For more information about the TSC Alliance of North Carolina, click here.

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